Update from The SleepHealth Study Team
The whole team wants to thank you once again for being part of this historic endeavor and helping us improve the first patient-led sleep health study ever conducted.
It's been an incredible week and it represents a year's worth of work by a small dedicated group of volunteers trying to change how research and engagement is done.
The most important part of this study is completing your surveys and doing the 7-Day SleepHealth Activities every 3 months. The more you participate, the more information you get back on your personal dashboard and the more data we have to seek new treatments, interventions, and cures.
We know that some have reported minor problems and we are working hard to address them. Please stick with it and tell your friends. The app if free to anyone over 18, whether or not they have sleep problems or health issues. Use it just like you would a pedometer or calorie counter to improve your health.
We want to hear about any issues you have or suggestions and ideas for new features, functionality, survey questions, or research topics. We will be adding new surveys in the near future, Please join us in our SleepHealth community forum at http://talk.sleeptember.org/.
The SleepHealth App and study is being conducted by the American Sleep Apnea Association, a 25-year-old and patient-led non-profit based in Washington, DC. It was conceived, designed and funded solely through the contributions of a small all-patient team of scientists, physicians, advocates and technology experts dedicated to health and data discovery in order to accelerate patient-centered and citizen research.
All data is de-identified and no one from outside the study team has access to your personal information ever. We worked with IBM on the development of Watson for ResearchKit and will be using Watson’s sophisticated analytic capabilities to give us and other researchers tremendous possibilities in seeking new discoveries using a tremendous amount of data.
Additionally, the Sleephealth app currently does not have the ability to track sleep from the iPhone or Watch as reported by some media outlets. Sleep data is collected by self-report only at this time. There are other capabilities available in the Watch and many more functions that we have planned
that will be incorporated in later versions.
This is a whole new way to do research and there will be some trail and error, but with platforms like Apple ResearchKit and IBM’s Watson Health, we can literally put a laboratory in everyone’s pocket.
Best in health,
The SleepHealth Study Team